| Definitions |
<p>A rare disease is one that affects fewer than 200,000 people in the United States. There are nearly 7,000 rare diseases. More than 25 million Americans have one.</p> <p>Rare diseases</p> <ul> <li>May involve chronic illness, disability, and often premature death</li> <li>Often have no treatment or not very effective treatment</li> <li>Are frequently not diagnosed correctly</li> <li>Are often very complex</li> <li>Are often caused by changes in <a href='https://medlineplus.gov/geneticdisorders.html'>genes</a></li> </ul> <p>It can be hard to find a specialist who knows how to treat your rare disease. Disease advocacy groups, rare disease organizations, and genetics clinics may help you to find one.</p> <p >NIH: National Institutes of Health</p>
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| definition |
A rare disease is one that affects fewer than 200,000 people in the United States. There are nearly 7,000 rare diseases. More than 25 million Americans have one. Rare diseases - May involve chronic illness, disability, and often premature death
- Often have no treatment or not very effective treatment
- Are frequently not diagnosed correctly
- Are often very complex
- Are often caused by changes in genes
It can be hard to find a specialist who knows how to treat your rare disease. Disease advocacy groups, rare disease organizations, and genetics clinics may help you to find one. NIH: National Institutes of Health
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